(Actually, it’s now a tedious underactive thyroid)
So now we’ve got four months down the line, the fun and joy continues with medication for my overactive thyroid now making it underactive. The situation goes like this: a) Get blood tests once a month b) wait for the endocrinologist to see the blood tests c) wait for the endocrinologist to write to the GP and d) get a change in medication. There are a few pitfalls to this system and they are as follows: a) the blood tests go to the clinic and are unavailable to the GP and to me b) the endocrinologist can take up to two weeks to see them and respond c) the GP can forget to respond at all and d) the patient continues to experience unpleasant symptoms because they are on the wrong medication now.
At 40mg of carbimazole, my thyroid levels went to within the normal range, at 30mg, the thyoid became underactive and at 15mg I have gained well over seven pounds, am cold all the time, am down and tearful and, worst of all, am so tired that I can barely function. It’s difficult to drive from child to child as a home tutor because I want to pull over and nap in the afternoon. I have done so just for five minutes on occasion.
The NHS response times are so slow that I have now reduced my own medication to 5mg a day on the grounds that I feel like crap. I will inform the clinic of this on Monday. If I can get through. Unlikely.
I think I say this every time I blog about health, but the system really is broken. I understand why and I’m not complaining or offering any solutions, but it’s really unsustainable. If I don’t get a suitable and timely response to the next blood test (Thursday – and I know the numbers will be very low) I will go private again. This is so unfair on people who can’t afford to go private, but I guess at least it frees up the NHS a bit more. The private system can’t cope with the influx, however. Their waiting times are also getting too long. What are we all going to do?
I had a test for Graves disease in the middle of December and am still waiting for the result. Is Covid affecting the labs as well? It’s all so miserable! Sometimes in these blogs I offer advice to fellow sufferers of hyperthyroidism/hypothyroidism and everything in between. I am sad to say that I have nothing of much interest. However, I am still adamant that the wealth of nutribollocks and self-help crap that can be found on the web is of no use whatsoever, but I understand why people fall for it all in a world of inadequate healthcare, long delays, poor communication and uncertainty.
Some recommend intermittent fasting, others say Paleo fixes autoimmunity and still others say to cut out all ‘processed food’, or go raw vegan, or ‘eat clean’ or give up gluten, dairy and sugar. Who are the people doing IF, Paleo or cutting out half the food on the planet? I don’t think I know any, although I know people who do the 5-2. It doesn’t seem very sustainable somehow. Intermittent fasting for life? Can’t imagine anything worse.
I’ve got a funny suspicion that autoimmunity is caused and exacerbated by stress. When I get a feeling in my head of being time-starved, overtaxed, anxious and obsessive, there’s a physical tension that accompanies that. It makes my shoulders tight, my jaw clenched and my forehead furrowed. I can’t imagine what it’s doing to my insides, but I know that high cortisol levels are really baaaaaaaaaad for us. I wonder if there were systemic measures in place to reduce stress, whether we would all magically become less plagued by weird and worrying diseases.
A four day week for all might help. Cycling in towns only so that we have to get fresh air and can avoid stupid gnarly traffic. Compulsory phone curfews so that we have to talk to each other. Maybe a community centre within walking distance of every home, with big comfy chairs, huge colourful fruit bowls, good coffee and board games. Sparkly pavements. Table tennis everywhere and public pianos. A better minimum wage and more effective public services.
Or getting together at a neighbour’s house to make crafts for the Jubilee, which is what I’m doing tomorrow. And walking, somewhere beautiful. Deep breathing, warm baths and favourite music. Smelly candles. A banning of winter. Booking a massage. Being kind. Pushing back the world of busyness and creating a home haven. Watching comedy. Right – that’s my Sunday sorted.