My self, your self, our selves.

The fragmented beauty of the inner world.

The part of the mind that Freud described as ‘the ego’ can be described as ‘I’ – the part of the personality that we think of as ‘ourselves’ and that needs to arbitrate between our drives, passions and desires and the internalised constraints of the society within which we live and work. We all know the struggle of wanting to do something, like punching some work colleague smack in the mouth, and suppressing it, only to stick a middle finger up at an impatient driver. The id and the superego are easy enough to define: one wants sugar all day and the other wants us to be disciplined and well-behaved. For those in committed partnerships, one imagines random strangers getting naked and the other reminds us to behave like a civilised adult.

Photo by Merlin Lightpainting on Pexels.com

However, it’s the ‘I’ that I’m concerned with. What is the ‘self’? Some say it’s a construct, always changing, thought up by the imagination – a construct that exists within the particular cultural and social context of each individual. The ‘self’ might be ‘kind’ or ‘generous’, ‘passionate’ or ‘brave’. The ‘self’ might simply be described as a character that we have assigned to ourselves and thus ‘self-esteem’ relates to how that perception is created. Therefore it can change with focused work in this area of linguistic description.

I don’t think the ‘self’ is exactly this simple a construct. I think it’s the part of our brain that experiences the world, and interprets each and every experience that confronts it, in a way that works for the individual. When, for example, I stand in front of a crowd and am asked to speak, my ‘self’ is the fragile hologram shaped by a combination of abject fear and the requirement to present myself as confident, articulate and knowledgeable. My ‘self’, therefore, is the receptor of a bombardment of emotional, sensory and intellectual stimulation, required in each given moment to interpret these and respond in a way that doesn’t shatter me in a hundred different ways. As people, we are exposed to dangers, both real and perceived, on a minute by minute basis, and our ‘selves’ have to negotiate these in a delicate balance of inner and outer worlds.

Our ‘selves’ therefore are amazing, intricate marvels of evolutionary development. But how do most of us face each moment and its infinity of stimuli? There are a gazillion answers to this but I suspect that lots of us use a variety of defensive techniques. Humour is one of them. Intellectualisation is another. How many of us show our ‘selves’? How many of us even know our ‘selves’?

I believe that we are drawn to those who feel intensely. It’s surely why we love animals. They do not hide behind humour or intellect but demand love and attention. Anyone who sees the bliss in a dog greeting its owner, the complete abandonment of joy and adoration, smiles in recognition of its purity. When we see a scared cat, revealing its fear in a cowering posture, seeking to make itself as small as possible, we feel a sense of love for the helpless creature. Children and babies captivate us with their emotional transparency. When they’re sad, their lips shoot out and when they’re happy they jump and hug themselves. I’m not sure what to say about people who don’t feel these reactions, other than that I pity them because anyone who doesn’t like animals or children has really just lost at life already!

At times of emotional need in my life I have attracted people who want to defend me. Open and obvious vulnerability brings attention as does passion, excitement, happiness and enthusiasm. It’s fine to be a closed book – if we want to live a lonely life. If we want to be loved, then we need to let at least one person in. Which leads me to connection.

What connects people? Is it inane conversation about the weather, how many kids they’ve got or what their job is? Although these chats can be sociable, enjoyable and engaging, they are precursors to true connection, which only occurs with the sharing of emotion. Not just the re-telling of emotion, but the experience of it. Tears in the eyes, whether of laughter or grief, bring an opportunity for that spark of magic. The re-hashing of emotion isn’t the same; it doesn’t work in words alone. It’s the experience. Being present in the face of genuine emotion is a privilege and a gift. If somebody lets us into their world, they show us who they are on the inside. They show us their ‘selves’. And only in that revelation, can we truly connect.

It is these connections that make us healthy. Knowing that at least one person knows us and has experienced the revealing of our emotions and has our backs makes us live longer. I don’t mind having friends on the fringe, but I want to know people deeply, too. At least a handful is enough for me. Some people need less.

Even outside of my closest friendships, I love to discover what people experience. I remember and treasure heartfelt observations from others. At Newark Toad Rescue, a high-end operation which involves buckets, nets, torches and high-vis jackets, I chat with a woman who obviously loves the warty little creatures as much as I do, for ‘their intrinsic value’ as she put it. This revelation of her inner world and perception, combined with the tenderness with which she places toads into her red bucket, makes me feel connected to her. A child told me recently that his mum makes him happy and I felt warm and fuzzy. Another child started to cry when it was time for us to leave, and his untamed emotion made us all adore him.

Who we all are on the inside is an amazing kaleidoscope of perceptions, memories, images, connections and experiential truth. We all have this treasure trove of worth within. It’s not connected with what we do in my opinion. People do terrible things because the ‘self’ has experienced and interpreted something badly, in a way that doesn’t reflect the society within which they operate. It doesn’t make them fundamentally less worthy. Like the toad, each individual has intrinsic worth.

Psychoanalytic theory believes that anxiety, depression and a host of other mental conditions occur because of an imbalance in the parts of the personality. Superego has a lot to answer for with its internalised shame. The healing of the ego, or ‘I’, is the only way to heal the whole person. It is possible through the formation of a ‘bond of trust’ with another person, who may be a therapist, and the development of health promoting behaviours in daily life. The type of therapy doesn’t matter. It’s the ‘bond of trust’ that creates the healing.

Therapy provides an opportunity for two ‘selves’ to connect in a way that probably doesn’t often occur in daily life, because of time constraints, embarrassment, self-absorption and distraction. As a therapist, I hope I can bring my deepest self, my ‘I’ into the therapy room and meet other ‘I’s, and connect with their experiences, perceptions and emotional lives. The privilege of doing this work is something that fills me with anticipation because it’s real in a way that most of us rarely encounter.

And outside of the therapy room, I want to focus on the fact that it’s this ‘bond of trust’ that promotes healing, no matter what the approach or the technique. I want to focus on that because, in the final analysis, what heals us every time is love. Not the self-seeking, pleasure-grabbing, exoticised type of love that is portrayed in our shallow media, but the sharing, compassionate, powerful acceptance of one another’s deepest selves.

Meditation Mashup

I think it’s safe to say that most of us know that meditating is great. It’s good to temporarily dial down the pace of our thoughts, whether for 10 minutes, half an hour or a few moments. A few deep breaths and a quiet moment of mindful observation is restorative.

A visualisation for regular practice

I am sure we have all read about other evidence based benefits. Lower blood pressure, recovery from stress, lower cortisol, reduced risk of chronic illness, better sleep, changes in the brain and more helpful thought patterns.

There are apps like ‘Calm’ and ‘Headspace’, both of which are fantastic tools for grounding and finding some inner peace over time, when used regularly.

Most proponents of meditation say it’s a daily practice. 10 minutes or 20 minutes a day is ideal. Personally I find even one every few days is good. I get a bit obsessed about streaks and it works for me to be a bit less rigid. Even one a week is good for the head. The most important thing is practising enough, initially, to learn it and train the mind to go into a meditative state, which is so beneficial.

About a year ago i started to look into transcendental meditation but quickly found out that it requires training with a registered TM teacher, for a cost of several hundred pounds. I joined a zoom chat with one in Leicester to find out whether or not I wanted to invest. I decided not. I would be paying for somebody to bestow upon me a sacred mantra which i must never disclose, and then to teach me how to use the mantra to reach my inner calm. I figured that i couod repeat ‘o mani omin a’ or ‘mummbo jummbo’ to myself and find my inner calm whilst keeping my £500.

I don’t subscribe to anything now as I can do my own thing to very good effect. It is a mishmash of mindfulness, a mantra and a visualisation. I’ve attached it as an example. Just write one out, record it and be your own guide. Or feel free to use mine. It works. I can get to my calm place within seconds now, whenever I want to. Very handy pre interviews, public speaking or facing a terrifying person, not that I know any.

And if it doesn’t work for you, or you think I’m batshit crazy, I hope you have a good day anyway and thanks for reading!

Why you should boost your ego.

As I’m training as a counsellor and am currently only a baby at this, with an exam in January, I have spent a fair bit of time pondering what the theory all means.  I don’t mean what it actually says, or even what it means on the surface, I mean – how does it actually help anybody?

Last week we scratched the surface of Freudian theory.  Despite all the problematic elements of the ideas and the person himself, he remains the founder of psychotherapy and his ideas still form the bedrock of more modern interpretations of the ideas.  We went through the idea that the personality is made up of three parts:  the ego, the superego and the id.

I think most people know more or less what these are.  To recap, the id is an inner child with no conscience or awareness of morality, societal norms or acceptable behaviour.  It is the part of the personality that wants everything and gives nothing.  Its only concern is survival and it does not constitute rational thought:  it exists in the subconscious and presents itself as emotions, desires and perceived needs.  The superego is the foil to the id.  It is the part of the personality that cares deeply about morality, society and acceptable behaviour.  It is the part of us that is concerned about fitting in, being liked, looking the way that society expects us to and behaving in ways that will result in positive outcomes.  The ego is the wavering, confused, often weak and sometimes exhausted person in the middle, trying to tread a path that keeps the others happy.  It isn’t moral and it isn’t especially thoughtful.  It just has to make a decision that will make the person feel OK and won’t end in disaster.  I think that about sums it up.

How does this help?  I know that there’s a ton more to psychodynamic theory, but I’m just thinking about this tiny bit.  I like to apply knowledge and ask whether it’s useful, which is why I love Professor Steve Peters’ ‘The Chimp Paradox’.  It’s not only a useful analogy of the brain, but he provides lots of really useful and practical advice about how to manage the chimp and how to become more human. 

As somebody who struggled most of my life with an eating disorder, starting at thirteen with anorexia and then developing binge-eating, then exercise bulimia and a whole host of EDNOS stuff in between, I often try to figure out what was going on in my brain.  I think that in Freudian terms, my obsession with food and eating must have developed in some sort of rebellion to the control and dominance of the church community.  There was no escape from it; we were controlled in every way.  But there were always cakes.  Yummy, sugary, pink French fancies, homemade chocolate tiffin, moist Victoria sponges and of course Mr Kipling varieties every Sunday at home, church, bible class and Tuesday special.  There were sweets, sandwiches, roast dinners, packets of crisps, club biscuits, penguin biscuits, jelly and icecream, crumbles and tarts.  Churches in the 70s were a smorgasbord of culinary delights, and ours was no exception. 

I enjoyed eating so much that, aged 18 months, I snuck into the larder and ate the centre out of every piece of bread in the bread bin.  There’s a photo of this auspicious event.  As a child, I was a big eater and remember the doctor patting my tummy and complimenting me on ‘enjoying my food’.  I guess this eating enjoyment was driven by the id, but then the superego kicked in at the age of 13 when I inadvertently lost some weight on holiday and was told how amazing I looked and how I was slim like my Auntie and pretty now.  All this societal praise and admiration made me determined to lose another half a stone like a good girl and be slim, worthy and more acceptable to everybody.  The great thing about this strategy was that the approval came from everybody and not just the Christians!  School friends, boys, my pervy piano teacher, more boys and everybody in the family and at church.  Nobody ever expressed any concern as I got thinner, developed a thigh gap and became too exhausted to walk up the stairs, never mind bike to my piano lesson. 

I started eating so little that I was starving by the weekend and started bingeing cake.  The id would win at that point – survival instinct – but then by Monday the superego would kick in again and the diet would re-start.

Where was the ego in all this?  I don’t actually think I ever made a decision that was based on anything good for myself.  I was so busy trying to please everybody around me that I didn’t know who I was.  I’d say it wasn’t really until I was 33 at university and achieving 1st class grades at a good university that I began to consider myself as even having a brain and possibly using it from time to time.  I started to reason, to be logical, to apply critical thinking and quickly the whole pack of cards of my internalised belief system came crashing down. 

I have built myself up from scratch and spent considerable time getting to know who I am.  The upshot is that I’m an OK person who likes to learn, read, talk about meaningful issues, have a few good friends, keep to myself a lot, exercise every day in fresh air and is kind, loyal and sensitive.  I’m OK with myself now.  I can spend whole weekends in my own company and look forward to it.  I am friends with myself.  I didn’t know how to do that before and I think it’s that and only that which can drive significant change in life.

When there’s one of the three Freudian components running the show, whether it be the id or the superego, the person is described as ‘neurotic’, which to me just means unhappy and unbalanced in some way.  It might be anxiety, depression, eating disorder, OCD, self-harm, suicidal thoughts or just low-level dissatisfaction.  The ego needs to be in good shape to take charge of our lives.  Here some some of my thoughts about achieving this. 

Get superego into perspective

Getting the personality in good shape might mean burning down traditions, scrapping the status quo and doing whatever it takes to be in the centre of our own lives.  So many of us go through life in servitude to what others think.  Pretty much every woman I know has had ‘mum guilt’.  What?  Has anyone even heard about ‘dad guilt’?  Why do we drive ourselves insane feeling guilty because a) we go to work or b) we don’t?  This is the superego and, really, it can piss right off.    We are here for a reason and it isn’t living a ghost life trying to keep everybody happy.  Instead of saying, ‘I can’t keep everybody happy’, just accept that we can’t do that and get on with doing the best we can to live a meaningful life as best as we can and in a way that works for ourselves and our families.

Be kind to the id

If you’re craving sugar, or finding yourself binge-eating, shopping too much or doing anything that you don’t really want to do and wish you could stop, and your id in running the show, there’s probably a very good reason for that!  Are you living your own life or is superego in charge, shouting expectations at you about how to behave, what to wear, how to change your body, judging your parenting, saying you look tired and should be wearing makeup?  This aspect of the personality is annoying and mostly wrong and inappropriate.  It’s helpful to have superego because she will stop you murdering your child or throwing dinner over your partner when they bring mud in the house.  But mostly I really think she is shouting abuse in an attempt to control what she thinks is dangerous.  It’s wrong!  And if superego is shouting unrealistic things, then id is going to kick off.  Id doesn’t like to be controlled and there will be an outlet somewhere along the line.  The answer to this is to look after yourself.  Properly!  Say ‘no’ to people, practice being honest and setting boundaries and take time to actually have fun and do what you enjoy for once.

Boost your ego

I’ve had therapy and it’s really helpful. Nobody ever told me about the id, ego and superego, but along the way I learned to make good choices and build a solid relationship with me. It’s so worth it for whatever it is that’s making life difficult. Buy less shit and get a course of therapy. Best money ever spent.

Journey of an overactive thyroid

Plus the sad state of the NHS

Photo by Karolina Grabowska on Pexels.com

I wrote a few weeks ago about my crazy overactive thyroid, which is now within range. What this means is that the 40mg of carbimazole that I’ve taken daily for the past four weeks has drastically destroyed some of my thyroid tissue thus rendering it incapable of excess T3 and T4 production. The TSH hormones that drive production of the T3 and T4 that circulate around in my blood are still ‘switched off’ but other than that I am ‘normal’. I feel fine, although a little tired. I have gained back the few pounds that I dropped, and it will be difficult to stop eating so much, as I got used to whole days of grazing, non-stop, on carbohydrates, just to hang onto the weight I was at. The downside as that I’ll need to be ‘titrated’ now which means staying on exactly the right dose of carbimazole to maintain the correct range. I think it can be tricky and can go under, in which case I’ll need thyroxine, and my private endocrinologist has still got me on 30g of carbimazole for another four weeks, although by that time I’ll have seen an NHS endocrinologist who might say something else entirely.

The other downside is that my liver function is now borderline. It was borderline at diagnosis, which was due to the toxicity of all that excess thyroid hormone floating about in my bloodstream, causing the liver to work harder. Either that or it was the borderline wine addiction but to be honest I don’t think so. It’s only ever been 2 or 3 glasses at a time and often none at all for weeks at a time, so probably not that. I’m now off alcohol completely and will be until I’m off carbimazole, because the liver function has worsened and is now causing my skin to break out and probably some of this fatigue. I don’t know whether the NHS endocrinologist will try a different medicine but I’ll ask at the appointment. I also still don’t know what the cause is, because the test for Graves disease that the private endocrinologist asked for was messed up by the lab, and my GP cannot request the test as it needs to come from a specialist.

This whole business of going private is sad. Not for me. It cost £200 and it was money well spent. But the fact that so many are having to wait five months to get seen. If I hadn’t have gone private, my condition would’ve worsened and the symptoms would’ve been really unbearable. I’d have had to give up work and be signed off sick, and had no income because I am classed as self-employed and don’t get sick pay. If I hadn’t have had the wherewithal to research my condition and realise what I needed, and discovered that GPs are not experts in endocrinology, and would be unable or unwilling to prescribe carbimazole in the doses that I needed, I would have suffered so much more than I did, and for longer. If I wasn’t the kind of person who makes a decision to get things sorted, and then acts like a bull in a china shop until they are sorted, nobody else would have conducted that fight for me.

I’m an intelligent woman with a will of iron and, although I’m genuinely kind and caring, I’m not gentle when it comes to getting what I need or getting what my family needs. In the past I advocated for my daughter by regularly bombarding the CAMHS unit and reminding them of the NICE guidelines. I contacted my local MP who also advocated for her. I got her treatment earlier because I kept on. My letters were well-informed, articulate and medically accurate. But how unfair is this? I’ve realised more than ever before in my new job how much the system is screwing over the most vulnerable members of our society.

How are these people supposed to get help? There are those around us in situations which are festering, problematic and downright unsafe. A single parent with severe mental health difficulties who cannot see a psychiatrist for months or even obtain the medication that would help them to find some space and calm. A child who can’t sleep because their routine has become completely upside down, who has missed so much school that they can’t tell the time, a child who is out all night and in all day, whose parent has learning difficulties and doesn’t really know how to parent, despite all the love in the world. A clinic where nobody answers the phone. Informative leaflets emailed out to people who don’t have the capacity to understand them and nobody to advocate for them. Local councils with social workers so snowed under with enormous caseloads who, through no fault of their own, are unable to support these families. GP surgeries with locked doors and phone queues over an hour long. Single mums haven’t got the time to wait over an hour. The baby’s crying, the washing needs doing, the cat needs feeding, the kids have to be fetched from school. They’ve got jobs that they need to pay the bills. They can’t get any help from anyone.

It’s a horrible speculation but is the NHS deliberately being run into the ground so that we can all go the American way and buy into lucrative personal health insurance schemes where the rich get richer and the poor just suffer? Where poor people with diabetes can’t get insulin because it’s not covered on their insurance? Where self-employed folks have no incentive to carry on and they have to go back into the corporate world? Or are we already there? I know that the families I work with are suffering because the NHS is no longer fit for purpose – which was to provide healthcare to every single person in a timely manner regardless of socio-economic status. If we are going the American way can we just get on with it then? Because what we’ve got now is neither here nor there. It’s a half-way house where people like me can badger, bombard and be heard, or pay the odd £200 for some timely treatment, and other people can just fall through the cracks in a ‘survival of the fittest, every man for himself’ kind of Trump-esque dystopia.

My thyroid condition will probably be well-managed and I’ll cobble together a path through it in a combination of self-management, education and professional input. But I’m sad for the NHS and all the amazing people who work in it. I hope against hope that this government really does put in some considerable funding and keep it going. I’ll never give up hoping that they really mean it and something will change. I don’t want to become the next state of America, driven entirely by consumerism, corporations, power and heirarchy. I want to live somewhere where every body is seen, valued and cared for with the same ferocious drive to thrive that most of us extend to ourselves and our own.

Spirituality

What does it mean to be ‘spiritual’?

For years, I resisted this word, connecting it to religion, man-made (as opposed to woman-made) structures, strictures, boxes, rules and shame. ‘The spiritual man’ is a concept discussed in the bible and many born-again Christians talk about ‘being in the spirit’, or being ‘spirit-led’ and they may be talking about being moved to pray, or heal, or speak in tongues. I was not raised to believe in these modern Pentecostal practices and indeed the brethren church in which I was raised preached that they were actually devilish. So any mention of ‘spirituality’ has previously made me deeply suspicious, deeply sceptical or deeply bored.

Photo by James Wheeler on Pexels.com

In the brethren, ‘spirituality’ meant MEN praying in deep, monotonous voices: ‘Our Heavenly Father we thank thee today for thy great mercy in giving thine only begotten son for our heinous sins and crimes against thee’, by which time my inner child is screaming to run away and dive into the sea and swim for the nearest ship to take me as far away as possible. And the Pentecostal tongues, happy clapping, dancing, Toronto blessing style of spirituality I find simply baffling. If anything, I put it down to the charismatic nature of a large crowd egging one another on to greater displays of abandonment.

Despite these negative views of spirituality, I have known forever that there is something in me and in others that constitutes a beautiful knowing and wisdom that is beyond logic or explanation. It’s what I felt when I sat in church listening to a compelling preacher and tears came into my eyes when they preached about God’s love and mercy. It was in the power of the words and the power of the love in their hearts, that thrummed in their voices and thrilled even the air. It’s what I felt when I first heard the second movement of Beethoven’s ‘Moonlight Sonata’ and lay on the floor, unable to move, physically trapped by the mighty power of each unspeakably sad outpouring of Beethoven’s grief-stricken heart. It’s what my brother felt when he was at an abbey on holiday, standing in front of a set of stone steps that were worn by the bare feet of monks, many thousands of monks through the ages who trod those steps in prayer and contemplation and Jon felt that inner knowing and awe that I have come to call spirituality.

I don’t believe in mediums and fraudsters who claim to be in touch with the dead. Having born witness to the great Derren Brown’s ability to ‘read minds’ using trickery, memory and neuro-linguistic programming, I think these people are using the same skill set and conning people ruthlessly and callously. But I was once hosting a German student who had become depressed and increasingly lonely, sitting in her room reading every day and even avoiding her friends. For her 18th birthday, I decided to make her favourite cake and invite some of her college friends over. As I was whisking up the ingredients for a black forest gateau, in my kitchen, alone, thinking of her and her inexplicable sadness, I found myself rooted to the spot, unable to move. A tingling feeling took hold of every atom of my body, tears came into my eyes and I was filled from top to toe with the deepest, most profound love that I have ever experienced. In that moment I knew that her father loved her and was thinking of her and that I should tell her so. I didn’t hear a voice but I experienced a knowing and, when the tingling stopped and I returned to normality, albeit very shaken and confused, I considered how to share this information with her.

The next morning, she emerged from her room for a coffee and some breakfast, and I said I’d like to talk to her about something that she might find confusing and odd, and that my intention was not to upset her. I shared my experience and the feeling that her father wanted her to know how much he loved her and was thinking of her, at which point she broke down in tears and explained that her father had died in a car accident when she was seven. She had been thinking of him for the past few weeks and wishing that he could see her at 18, becoming an adult. I held her as she cried, and witnessed her return to her bubbly self later that night when her friends came for her little party, and I knew that this was a spiritual experience that had nothing to do with church, or religion, or anything man-made of any type. It had never happened before nor since and I do not think of myself as psychic. I believe that something greater than me occurred, that could well be explained by psychology, buried memory or intuition, but the explanation does not matter when the outcome was nothing but pure love and healing.

I used to want to have a set of beliefs that would be unchanging, wise and ever-helpful. I looked to books, programmes, philosophies and theories to try to find them. When I left the brethren there was a gaping empty hole in my way of being because up until then there had been certainty, security, community and structure. Anyone who has left a fundamentalist church will know the aching emptiness that happens when it is gone. It goes far beyond the loss of friends and the community. We were shaped by that religion. It is in our DNA. Without it, we are lost, like de-programmed computers that don’t function properly. But we aren’t computers. We can think outside of the conditioning and brainwashing. We left the fundamentalism because, despite the loving community that it provided, it hurt us and harmed us. I was offended by the shunning of a friend, the demands that my six year old child cover her head and the rigid and often contradictory, cherry-picking interpretation of the Bible. As I completed a literature degree as a mature student, I began to see the Bible as a collection of texts, with fascinating historical contexts, and I began to see the brethren’s insistence on seeing it as one cohesive message from God as an addiction.

Because we aren’t computers, we can re-programme ourselves by learning who we are outside of our conditioning. It’s hard, because it seems like everything. But since I left, over fifteen years ago, I have realised that my deepest self is wise and good. Somebody told me to ‘head for the light’ when I was lost in a bad situation and wildly grabbing for external guidance. When I thought about it, I knew what he meant. The light of intuition, the lodestar of MY truth. These are my truths: life is not fair, we cannot control people and love is the only thing that matters. Love for others and love for ourselves.

My truth actually resonates with what Jesus said, and every other religious leader that ever existed. It’s not the religious leaders that are at fault in this world: it’s the humans that grab it and twist it and make it a tool to control or manipulate. Inside and outside of churches, there are beautiful, wise, loving souls who live in light and love.

When I am digging the allotment and Mr Robin comes and waits for a worm, I feel an inner peace wrought in silence, physical exercise and the energy of nature. When I write, I am lost in the quest to speak truth and bring value to myself and others. When I walk in the mountains or look at the stars, I experience that inner knowing that I have come to call spirituality. I’m not sure what it is that I know. God? Possibly. But I have so many issues with the name ‘God’, infused as it is with patriarchal bollocks.

I know that there is more, so much more, than what we can understand or explain. I know that there is an energy, a lifeforce, a mighty power in every leaf, beetle, cloud and rainbow that we can’t explain or understand. I know that we’re connected to the stars and the cosmos and that a newborn baby carries in its tiny, helpless body and searching, grasping fingers the very essence of the divine love from whence it came. And I know that, when I die, I will return to that divine energy. While we live, we can be spiritual, when we are still for long enough to notice. The fact that it escapes definition and can’t be captured in words matters not; if it could, it would become something else, trapped and limited within the confines of human communication. And it’s so much more than that.

My crazy overactive thyroid

My first seven weeks with an overactive thyroid.

Hyperthyroidism and me

When did it start?

I was out on a run on the 4th August, my last run before the Belper Rover, an 18 miles trail run that I’d had planned for a while. This was my last long run and I’d planned a 15 mile route around the beautiful Stapleford area of Nottinghamshire. From the very get go I felt horrible: hot, out of breath and heavy. It was a muggy, warm day and I put it down to the heat, sipping at the water from my carry pack and persevering doggedly through country lanes and footpaths until, on mile 7, I realised that it was not going to get any better. Deciding to significantly slow my pace, I shuffled along for another few miles and realised that my heart rate was up to 200, which panicked me. At 50 that’s way over my maximum heart rate and I stopped to walk. The last 5 miles were a nightmare of heat, exhaustion and confusion as I wondered what the hell was wrong. Arriving home, I put it down to a virus as my stomach was churned up and painful. I rested for the remainder of the day and went to bed.

The next day my resting heart rate was ten beats a minute higher than usual at 65 and once again I thought that this confirmed a virus. The next evening I had a 7 miles race booked in the Peak District with my stepdaughter Jess. It would be hilly and hot and I knew I shouldn’t do it. But I messaged Jess and told them I’d be there but may have to stop and walk if I felt unwell. Next night I started the Saltcellar race and made it three miles before feeling sick, exhausted and anxious. I was already running at the back and I stopped to let the two women behind me past and then told the next marshall I was heading back. He kindly accompanied me back and I decided not to run again until I felt much better.

Diagnosis

Through the month of August I did no running but lots of walking. After a holiday in Whitby where I ate all the chips, chocolate and cakes physically possible to get in my belly, I got home and found I’d lost weight. The heart rate was still ten beats a minute higher than usual and I was going to the loo a lot more (putting it politely). Googling my symptoms led to my suspicion that my thyroid had gone overactive and finally, beginning of September, I had a blood test which revealed this to be true.

What it’s like

Having this condition for me has been manic. Up until yesterday, when I started betablockers, I was hyper all the time. I would try to go to sleep but my heart would be banging in my chest so loudly that I could actually hear the swooshing sound of the blood. Needless to say, this is not the most relaxing feeling I’ve ever had. My husband even said he could hear my heart one night, which made me feel even worse. The hunger for carbs was overwhelming until I started on carbimazole, which dulled the appetite. I couldn’t even get all the food I wanted, because I’d get full and then be hungry an hour later. Nothing was able to keep me energised and I was bored of eating the same things but trying to avoid filling up on sugary foods (which I did occasionally do). My anxiety was the worst thing. I’d be going about my daily life and then, apropos of nothing, get a feeling that I was about to die. My stomach would churn, I’d get sweaty, and feel complete panic, with nothing triggering it and no way of knowing when it was going to happen. I also couldn’t stop my mind from racing and worrying, in a pointlessly circular track that said, ‘I can’t teach, I can’t teach, I can’t teach’, or ‘I can’t plan, I can’t plan, I can’t plan’, and, occasionally, for a little respite from the shit talk about work, ‘I might die of cancer’. It was a laugh a minute in my head. Thank goodness that the betablockers have stopped most of this incessant self-imposed verbal abuse.

What to do

GP will refer to an endocrinologist for further testing. Ask for an antibody test to see if it’s Graves disease. This is the most common cause and is an autoimmune condition. It can lead to eye disease and needs to be managed. If, as in my case, the antibody test comes back negative, it’ll need further testing. It could still be Graves as some people don’t show antibodies even though they have it. You need an ultrasound or a thyroid uptake test to see if it’s nodules, most of which are benign. The treatment is similar in any case. It might be an anti-thyroid drug like carbimazole, which makes you knackered for a bit but eventually works. After a while you might be offered radioactive iodine, which kills the thyroid and then you have to take thyroxine for the rest of your life. This is called ‘block and replace’. Whatever the treatment, you need regular blood tests for ever after to make sure the thyroid levels are right.

Some GPs are crap and some are great. I had a crap one first and then asked for another one because the crap one said he couldn’t prescribe anything and I’d have to wait for the endocrinologist. This was a lie and downright dangerous as my free T4 was rising rapidly and had doubled in two weeks. A GP can prescribe carbimazole and also betablockers for the palpitations and high heart rate. The worst symptom for me was anxiety and I’m so happy to be able to say that in the past tense as just one day on betablockers has knocked it out. So far my 10mg a day of carbimazole is doing nothing so that’s under review at the next blood test.

Our poor NHS is gasping for air and a hair’s breadth away from irretrievable decline. I was told 18 weeks for an endocrinologist and, in the event, it was 12. With the small possibility that it might be something malignant I have decided to see a private endocrinologist for £200 a pop plus the cost of any tests. I realise that I’m privileged to have some savings and not everybody does. But if you do, or if you can shove £2000 on a credit card and pay it back over a few months, I’d recommend getting it sorted asap.

Recommendations for living with an overactive thyroid

  1. Go to bed early and nap during the day even if you only have time for 10 mins.
  2. Get on a beta blocker
  3. Eat as many carbs as you can fit in your belly
  4. Do some yoga (I can’t be bothered but I know I should)
  5. Walk every day and get some fresh air. Don’t try and run unless you’re a nutter like me
  6. Lift some weights as this disease wastes your muscles and can cause osteoporisis
  7. Eat a ton of calcium foods. For me it’s enriched plant milks. Bones will need it.
  8. Get a journal and write down all the worries. There will be loads. Writing them helps.
  9. Talk to anybody who will listen. This is a time when friends are needed.
  10. Use a meditation app every day to get some calm
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